Covid

It’s been a while since I blooged. So here I am, back to continue sharing our CF journey with you. Let me take you back to June 2022…

In June the day we’ve been dreading hit our home and all 5 of us tested positive for Covid. Of course, we went into panic mode but the CF team assured us that CF kids cope with Covid reasonably well and fortunately for us, this was the case. Genevieve suffered more recently with a case of bronchitis that she couldn’t shake, which required our first hospital at home care. This involved the hospital physio coming out daily to do her chest percussions, this helps to clear the lungs of think sticky mucous. It is very tricky with 3 toddlers to do this effectively myself.

After having Covid Genevieve and Penelope had a few other respiratory viruses but they were upper respiratory and we managed these at home. We had a household full of sick little girls . Rhinovirus and a chest infection.

Our most recent visit to the CF clinic saw the girls having chest x-rays, sputum tests and blood tests. It was discovered that Penelope has a slightly collapsed lung and a follow up x-ray showed it had not changed. The specialist isn’t overly concerned as she is well so we will just be monitoring it.

I often fundraise for CFSA and use my social media as a platform to help raise awareness and will be starting up a blog about our CF journey too. This year I launched my website for my little business ‘It’s A Twin Thing’, which I am honoured to have Cystic Fibrosis SA logo on.

While our day-to-day life seems ordinary to us, it certainly has its extra challenges and stresses. I choose to be active in the CF community, spreading awareness, fundraising and advocating for my precious CF twins.